Posts Tagged ‘speech disorders’

Cute? Yes! Clever? For sure!

Friday, July 2nd, 2010

I never allow comments on Luke’s You-Tube videos.  In the past I have received some of the most random and  occasionally just down right rude comments. I try to guard my son against things like that. Of course he didn’t decide to show the world his struggles with Apraxia, I did. I have second guessed my decision several times but in the end I like to think I am raising children who want to make a difference in the world.  I like to think if Luke ever questioned me about it, I could say, “You gave people hope, you showed other families what is possible!” And I like to think that would settle his thoughts. I hope I’m right.

Yesterday I was doing some random searching on Apraxia videos. I haven’t checked in on my posted videos in a long time. I was so surprised to see Luke’s very first therapy video has received over 12,000 hits. I think people are drawn to it because he looks so young. He WAS young, just barley two. A lot of people sent me responses wondering how he could even begin therapy at such a young age.  I ran across another little guy, Owen! Owen’s mom posted a video of Owen at 33 months, after six months of taking fish oil. I remember Owen. This was the video I found and watched nearly two years ago when I was searching for answers myself! This little guy is so cute. It was wonderful to see him talking and answering questions independently.  I scrolled down and started reading the comments. I chuckled as I read this one,

“Are you sure he has verbal apraxia? Cause he not even 3, and he bright!! (and really cute too.”

I loved Owen’s moms quick response,

“Yes, I am sure. He was diagnosed by a speech clinician. Many children with verbal apraxia are very bright and very cute ;-)”

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That just reminded me and reassured me of what a great idea it is to keep You-Tube comments in the off position….

CUTE? YES!

After a day at the beach Luke says, “I want to jump in a sleeping bag and go swimming!” I said, “Luke, that doesn’t sound like such a good idea.” He says, ” Yes it is, that way sharks can’t get me!”

CLEVER? For sure!

Apraxia of Speech- Does it ever melt away?

Wednesday, January 6th, 2010

This question seems to come up from time to time. I’ve certainly questioned if this is a possibility myself.  Oh, wouldn’t it be great if tomorrow this was suddenly resolved. Unfortunately, this is not the case. True Apraxia of speech is lifelong and does not disappear on it’s own. The good news is with appropriate help and treatment most children with CAS can learn to speak clearly.

When Luke was initially diagnosed some one explained things to me in a way that really made a lot of sense.  They said to think of the brain as a spider web, connections running in all different directions. If one part of the web is broken or disconnected, there is usually another pathway that can be used to get to the same place. It may take longer. It will take help, but you can get there.  That was a great way for me to visualize the situation. It still really bothered me though to think that forever Luke will have to think about that secondary pathway to speak.  This was inaccurate thinking on my part because if Luke learns to speak using a secondary pathway, isn’t that a first pathway for him?  He would never know any difference.  Does this make any sense? Anyhow, I’ve been doing some research on the toddler brain, it is an AMAZING thing. I have a better understanding of why early intervention is so important.

Seventy-five percent of the total brain growth occurs between one to three years. By the age of three, a toddler’s brain has formed about 1,000 trillion (not a million or even a billion, a TRILLION) pathways or synapses ­ about twice as many as we have. The toddler’s brain is super dense and primed for learning. When a pathway is used repeatedly, it becomes permanent; a pathway used infrequently is lost. This goes along with the old saying, use it or lose it! This is actually true.

You can see in this picture the density at age seven compared to age fifteen. At fifteen many connections have already  diminished. Of course we can continue to learn throughout life. It is just not as easy as in those early formidable years. Especially when it comes to speaking. It is very difficult to correct patterns that have been set in and repeated year after year.

Some people thought I was over reacting when Luke was very young and I was really starting to worry and question things. Even the doctor brushed me off.  I am so glad I moved ahead with my intuition. He is now a year and a half into therapy and still has a long way to go. When I look at some of his early videos I think, my gosh, he’s just a baby! And he was. This has given him the greatest chance of success with language. If you think something is wrong what do you have to lose by pursuing evaluations and seeking help?

About this time a year ago I attended the most valuable seminar in regards to Apraxia. Nancy Kaufman has been treating children with CAS for over 25 years. The seminar is designed for speech therapist but is also open to parents. Her methods are the reason my son has a voice today.  Nancy Kaufman is once again lecturing through out the country. If  you have the opportunity to attend her workshop you will have a wealth of practical ways to really help your child! I’m encouraging you to GO, GO, GO! LOCATIONS

Homework

Saturday, May 9th, 2009

I was very excited when I came back from a bike ride to find Dad helping Lily with her home work, and Luke with his. This is my favorite oral motor toy. A green crocodile that has big yellow eyes. You blow and the eyes pop out. Luke loves this one. O.K. So I know it was kind’a dirty to be doing oral motor toys on the drive way. But what can I say. Sometimes things like this happen when my husband is left with the kids. I’m a firm believer in dirt anyhow, so what the heck!

Among other things, we have train whistles, kazoos, vibrating star, teething ring, bumpy rings that are really great for dipping in sour stuff. Pucker -up!

Ready, set, blow!

Meeee!

I’m scripting, It’s working!!!!

Monday, February 16th, 2009

There’s a reason speech pathologist spend years and years in school! There is so much involved. The fine details of speech are honestly mesmerizing. Much of the time at the Nancy Kaufman conference my mouth was hanging open and my brain was on overload. As a parent trying to really take it all in was difficult. However there are a lot of things I was able to grasp and have already begun implementing with Luke,  and It’s working!!! Nancy started off with this analogy; O.k if you have a child that has very little or no spoken language it’s likely you would start introducing sign language, hopefully the child would be able to pick up some approximations for signs. We certainly would not expect a young child to make a perfect ASL sign. But if the child makes the attempt at it, we would be very happy about the effort and would quickly learn what the child’s sign meant for that particular item. Thus the same thought should be in effect when it comes to spoken words. If a child can learn to make best approximations (to his/her ability)  for words, it’s a starting point. As time and therapy goes on you can help the child bridge the gaps and fill in the missing parts! Example Luke’s best word approximation for “Ball” may be “Ba”. L’s are very hard we can fill in those ll’s later on when he gets them. Luke says “Pu-Pa” for purple. R’s again they are hard, they will hopefully come in time. Breaking down words to their simplest form and encouraging the child to make best word approximations. I love the example of breaking down the word “people”. If Luke pointed to a crowd and said “Pe-Po”, I would know what he meant. Just like I understand his signs even though most are far from perfect. That’s just one general idea, hopefully that makes a little sense.

Another great tip that is helping so much is always putting the answer in the question.  To ask an Apraxic child to come up with answers out of thin air is extremely hard.  Example if Luke was trying to open the door I might say “What do you want me to do?” but way better for me to say, “Do you want me to open the door” even further I would say “Do you want me to open door?”  The answer to my question is fresh in his mind, it was the very last thing I said. “open door?”  Then I have been asking him, ” Tell me Luke, open door?” Luke responds with ” Oh-pa  do”  Yes it’s far perfect but again I’m happily accepting it and praising him big time for his attempt. Nancy was talking about scripting, A lot!  Helping your child write your his/her dialog. I’ve found a new passion of Luke’s, cooking! It’s a great place for scripting.It would be something like this;

“Luke, do you want to open eggs?”

“Tell me, open eggs.”

With my help and prompting he says “oh-pa  eh-g” then he gets to open the eggs.

Even if I have to break it down one syllable at a time. “Oh, pa, eh, ga.”(open egg)

Then again same thing “Luke, do you want to crack eggs?”

“Tell me, crack eggs”

He says “cak- eh-ga”(crack egg)

and so on “Luke, put in”

walk him through “Pu-ta, n”(put in)

When you script over and over suddenly you will hear words come spontaneously. It must be that you are training the brain again and again until the cues fade, it just comes automatically. Now Luke goes in the drawer, pulls out a spoon,  and says “ma-ma cook?” I love it!

Another helpful hint is finding the child’s to die for items and activities especially when you are doing speech homework.  Naturally, Luke is  much more motivated when the reward is great! So I’ve put certain things aside and made them only for homework time. Makes homework more successful and a very exciting time for him!

These are just a couple of examples of what Luke’s is working on. I would encourage any one out there to go to the conference for yourself. See the methods over and over so you can get a good grasp of it.  Nancy Kaufman has conferences all over the country and even Canada! See her website for details. If you still wondering if your child even has Apraxia of speech you can send a video of your child, she will take a look at it, and she will call you back to discuss her evaluation. Also see her web site for more info. click here. If you are in the So. California area you can also see Megan McCann at Lucid speech in Murrieta. She is also an expert in the field of Apraxia, trained in the Nancy Kaufman methods, and conducting research in the field of Childhood Apraxia of speech. She sees many patients who travel a distance even just for an evaluation. She also takes questions on her website at Lucid Speech and Language.