Posts Tagged ‘Lucid Speech and Language’

Why Does It Matter?

Sunday, May 3rd, 2009

Labels are just labels. Why does it matter if it’s called speech delay or Apraxia? Top two reasons. Number one, getting your child in the right type of speech therapy is crucial.  Speech therapy for Apraxia is different.  Think of it as “training your brain”. It involves visual cues and prompting over and over again. Some one once told me with Apraxia you might have to repeat a word a hundred times to get your child to say it once. I think it’s more like a thousand! Seeking treatment with a therapist that is not familiar with speech Apraxia is a bad choice. Why take the side streets, when you can jump on the freeway! I’m sure there are techniques that  work for a child with Apraxia, but there is one method that is tried and proven -The Kaufman speech praxis treatment approach.(Nancy Kaufman)

The Kaufman speech praxis treatment approach helps the child produce words with their best approximations through shaping, cueing, fading, and reinforcement techniques, employing the principles of operant conditioning/shaping (Skinner, 1959)-there’s that brain training. True Apraxia does not go away, it is life long. If left untreated it will not resolve on it’s own.

And number two, so you can be reassured you are not losing your mind! It can be very confusing and frustrating journey to discovering Apraxia in your child.  We were told speech delay (he will talk when he’s ready) several times.  I would just leave appointments scratching my head because that just didn’t add up.  It left to many questions unanswered.   We thought maybe Luke was Autistic, some parts fit, but then still that didn’t really add up either. We finally heard the word Apraxia from a wonderful Occupational therapist. She went back and reviewed with us Luke’s language from the very beginning.  After researching and learning about it, all the pieces  fit. It finally made sense!

I’m scripting, It’s working!!!!

Monday, February 16th, 2009

There’s a reason speech pathologist spend years and years in school! There is so much involved. The fine details of speech are honestly mesmerizing. Much of the time at the Nancy Kaufman conference my mouth was hanging open and my brain was on overload. As a parent trying to really take it all in was difficult. However there are a lot of things I was able to grasp and have already begun implementing with Luke,  and It’s working!!! Nancy started off with this analogy; O.k if you have a child that has very little or no spoken language it’s likely you would start introducing sign language, hopefully the child would be able to pick up some approximations for signs. We certainly would not expect a young child to make a perfect ASL sign. But if the child makes the attempt at it, we would be very happy about the effort and would quickly learn what the child’s sign meant for that particular item. Thus the same thought should be in effect when it comes to spoken words. If a child can learn to make best approximations (to his/her ability)  for words, it’s a starting point. As time and therapy goes on you can help the child bridge the gaps and fill in the missing parts! Example Luke’s best word approximation for “Ball” may be “Ba”. L’s are very hard we can fill in those ll’s later on when he gets them. Luke says “Pu-Pa” for purple. R’s again they are hard, they will hopefully come in time. Breaking down words to their simplest form and encouraging the child to make best word approximations. I love the example of breaking down the word “people”. If Luke pointed to a crowd and said “Pe-Po”, I would know what he meant. Just like I understand his signs even though most are far from perfect. That’s just one general idea, hopefully that makes a little sense.

Another great tip that is helping so much is always putting the answer in the question.  To ask an Apraxic child to come up with answers out of thin air is extremely hard.  Example if Luke was trying to open the door I might say “What do you want me to do?” but way better for me to say, “Do you want me to open the door” even further I would say “Do you want me to open door?”  The answer to my question is fresh in his mind, it was the very last thing I said. “open door?”  Then I have been asking him, ” Tell me Luke, open door?” Luke responds with ” Oh-pa  do”  Yes it’s far perfect but again I’m happily accepting it and praising him big time for his attempt. Nancy was talking about scripting, A lot!  Helping your child write your his/her dialog. I’ve found a new passion of Luke’s, cooking! It’s a great place for scripting.It would be something like this;

“Luke, do you want to open eggs?”

“Tell me, open eggs.”

With my help and prompting he says “oh-pa  eh-g” then he gets to open the eggs.

Even if I have to break it down one syllable at a time. “Oh, pa, eh, ga.”(open egg)

Then again same thing “Luke, do you want to crack eggs?”

“Tell me, crack eggs”

He says “cak- eh-ga”(crack egg)

and so on “Luke, put in”

walk him through “Pu-ta, n”(put in)

When you script over and over suddenly you will hear words come spontaneously. It must be that you are training the brain again and again until the cues fade, it just comes automatically. Now Luke goes in the drawer, pulls out a spoon,  and says “ma-ma cook?” I love it!

Another helpful hint is finding the child’s to die for items and activities especially when you are doing speech homework.  Naturally, Luke is  much more motivated when the reward is great! So I’ve put certain things aside and made them only for homework time. Makes homework more successful and a very exciting time for him!

These are just a couple of examples of what Luke’s is working on. I would encourage any one out there to go to the conference for yourself. See the methods over and over so you can get a good grasp of it.  Nancy Kaufman has conferences all over the country and even Canada! See her website for details. If you still wondering if your child even has Apraxia of speech you can send a video of your child, she will take a look at it, and she will call you back to discuss her evaluation. Also see her web site for more info. click here. If you are in the So. California area you can also see Megan McCann at Lucid speech in Murrieta. She is also an expert in the field of Apraxia, trained in the Nancy Kaufman methods, and conducting research in the field of Childhood Apraxia of speech. She sees many patients who travel a distance even just for an evaluation. She also takes questions on her website at Lucid Speech and Language.

No Regrets!

Saturday, February 7th, 2009

Today has been a day filled with so many different emotions. I was very excited to attend an all day conference with Nancy Kaufman (the Apraxia Guru). The conference was mainly geared for speech pathologist but it was also open for parents.  I didn’t really know what to expect.  It was great to sit next to Luke’s speech therapist Megan, she was able to point things out in reference to Luke.   It’s so comforting to know he is receiving the best therapy at Lucid speech!  I can’t say enough about the caring and compassion that has been shown to us, and honestly the hard work! There are days I have cried through Luke’s entire therapy session. Miss Megan hands me a tissue, then carries on with her work because she knows she only has 25 minutes to work with him. She is supportive in understanding of my feelings but she is committed and focused on the task at hand. Well today I made it through the entire conference with no tears! Then I got in my car and cried most of the way home.  The conference was extremely positive! There was so much information,  I’m going to organize my thoughts and definitely share all that I can with you in upcoming posts.  So I’m sure you’re wondering why then would I be crying??  I’ll admit I am sensitive, but beyond that I guess the hard parts of it is truly not knowing how the story ends.  When you spend the day faced with the reality of it,  well it troubled my heart. It was interesting to see just how truly Apraxic my son is. He fit in nearly every way! I saw aspects of him in so many of the children’s videos. Another hard fact is watching the work that these precious kids spend learning to talk. Years and years! Videos of a child at 2,3 5,7. Something that came so easy for my first two children but is so so hard for little Luke.  Knowing he is facing the same work ahead! Honestly as I drove home I did question”God, why?” Not like in a mad or angry way, just truthfully asking, “Lord, why??” And not just about Luke but why for all the children I had seen. Then the vision of a beautiful porcelain face, bright twinkling blue eyes, and waves of toe head blonde hair flooded my mind. My sweet Luke! It came to me that these are special angels on earth. They amaze us and show us lessons that can only come from a child. I know I’ve said it before, lessons about how to keep going and never give up! Showing us that hard work pays off. Showing us that happiness is certainly not measured by how many brain cells connect! Light and hope radiate from their stories! So with that little face ingrained in my mind,  I said to myself “Buck up! No more crying, seek God, trust Him, take all the information you learned today and do everything you can to help your son! So when it is all said and done, and you stand before God you can say and know in your heart you did everything you could!” I would walk to the ends of the earth for all of my children, I want to have no regrets! Well, I got it out of my system,  the Lord tossed the troubled heart and filled it with joy! Preston and Lily both had friends over so they were uninterested in my return, but Luke was waiting. I started right in with him on Nancy’s techniques.  We had over the top fun. I had that boy more excited and attempting more words and sounds then ever before. I’m excited to see what tomorrow brings!

Miss Megan, Me, and Nancy Kaufman!