Comments for House of Krause http://jenkrause.com/blog by Jen Sat, 19 May 2012 20:39:49 +0000 http://wordpress.org/?v=abc Comment on What’s up with Max? by Jenny http://jenkrause.com/blog/2011/01/whats-up-with-max/#comment-2227 Jenny Wed, 16 May 2012 17:54:32 +0000 http://jenkrause.com/blog/?p=1999#comment-2227 Brilliant! I think you're right! Brilliant! I think you’re right!

]]> Comment on YOU ARE NOT ALONE by Misty http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2226 Misty Fri, 04 May 2012 19:52:01 +0000 http://jenkrause.com/blog/?p=2108#comment-2226 Thanks for posting! I can relate on all levels with this mama. My son has been in early intervention since the age of one, he just turned three. We are still waiting on a diagnosis, but he is being treated like he has CAS. I can remember his first word at 18 months, "mom". It is the only word he didn't lose (maybe because I so persistent and always wanted to hear it). Like Becky, I had problems with breastfeeding and my son has been considered low weight gain since he was born. He was late in all his gross motor skills and did not walk until 23 months. It has been a very lonely road as we watch all the other kids, in our circle of family and friends, walk and talk. It is like being in a race, watching all the other contestants cross the finish line and not knowing when or if we ever will. Thanks for posting! I can relate on all levels with this mama. My son has been in early intervention since the age of one, he just turned three. We are still waiting on a diagnosis, but he is being treated like he has CAS. I can remember his first word at 18 months, “mom”. It is the only word he didn’t lose (maybe because I so persistent and always wanted to hear it).
Like Becky, I had problems with breastfeeding and my son has been considered low weight gain since he was born. He was late in all his gross motor skills and did not walk until 23 months.
It has been a very lonely road as we watch all the other kids, in our circle of family and friends, walk and talk. It is like being in a race, watching all the other contestants cross the finish line and not knowing when or if we ever will.

]]> Comment on Why Does It Matter? by L Olson http://jenkrause.com/blog/2009/05/why-does-it-matter/#comment-2225 L Olson Thu, 03 May 2012 13:47:18 +0000 http://jenkrause.com/blog/?p=706#comment-2225 I found your video last night on YouTube and your son Luke said the word "star" exactly like my kiddo says it. I just started crying, because deep down I feel like there is something more behind his delay. He is currently in ST and has a significant delay in expressive speech. So far no one has really given a diagnosis and the SLT has said she doesn't not think he has apraxia because he doesn't say a different word each time. They threw around autism and aspergers but we've ruled those out too (he's incredibly social and loving, lots of smiles, etc). I am now trying to learn as much as I can so I can be the best advocate that I can for my son. Thanks so much for all the info! I found your video last night on YouTube and your son Luke said the word “star” exactly like my kiddo says it. I just started crying, because deep down I feel like there is something more behind his delay.

He is currently in ST and has a significant delay in expressive speech. So far no one has really given a diagnosis and the SLT has said she doesn’t not think he has apraxia because he doesn’t say a different word each time. They threw around autism and aspergers but we’ve ruled those out too (he’s incredibly social and loving, lots of smiles, etc).

I am now trying to learn as much as I can so I can be the best advocate that I can for my son. Thanks so much for all the info!

]]> Comment on YOU ARE NOT ALONE by Molly http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2223 Molly Tue, 24 Apr 2012 14:53:53 +0000 http://jenkrause.com/blog/?p=2108#comment-2223 Thank you for sharing this. My son just turned three, and I'm right there with you. You are definitely not alone, and I'm trying to learn what Kristen wrote--remember the good and try not to worry about the future. Unfortunately, so much of our life is enveloped in apraxia--as you all know--you spend your life at speech therapy, turning every interaction into a mini therapy session, etc., it's hard to step back sometimes, isn't it? I love reading about all of your messages of hope. Our little ones are working so hard! Thank you for sharing this. My son just turned three, and I’m right there with you. You are definitely not alone, and I’m trying to learn what Kristen wrote–remember the good and try not to worry about the future. Unfortunately, so much of our life is enveloped in apraxia–as you all know–you spend your life at speech therapy, turning every interaction into a mini therapy session, etc., it’s hard to step back sometimes, isn’t it?

I love reading about all of your messages of hope. Our little ones are working so hard!

]]> Comment on YOU ARE NOT ALONE by Kristen http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2222 Kristen Mon, 23 Apr 2012 01:40:50 +0000 http://jenkrause.com/blog/?p=2108#comment-2222 Thank you for sharing your story and this email. It is a true journey as a parent but it is one of the hardest when your precious child struggles to talk. My son is three and he has worked so hard to speak. Sometimes I just wish that I could make his life a little easier. My husband and I try to cherish each word and gain. Sometimes it is hard to remember all of the good and not take this time with worrying about the future. Thank you for sharing your story and this email. It is a true journey as a parent but it is one of the hardest when your precious child struggles to talk. My son is three and he has worked so hard to speak. Sometimes I just wish that I could make his life a little easier. My husband and I try to cherish each word and gain. Sometimes it is hard to remember all of the good and not take this time with worrying about the future.

]]> Comment on KONY 2012 by Mommy Square http://jenkrause.com/blog/2012/04/kony-2012/#comment-2221 Mommy Square Thu, 19 Apr 2012 01:47:14 +0000 http://jenkrause.com/blog/?p=2194#comment-2221 The videos of your Luke in therapy were the first videos on youtube that I found to look like my Luke. I want to thank you for your posts of the video and for your blog. Without it, I would have found answers...I am just that kind of mother, but it made it so much easier for me to know what kind of therapy my Luke needed and that their was hope. www.unlockinglukesvoice.com We are on facebook too :) The videos of your Luke in therapy were the first videos on youtube that I found to look like my Luke. I want to thank you for your posts of the video and for your blog. Without it, I would have found answers…I am just that kind of mother, but it made it so much easier for me to know what kind of therapy my Luke needed and that their was hope. http://www.unlockinglukesvoice.com
We are on facebook too :)

]]> Comment on October 26, 2008 by Fabienne http://jenkrause.com/blog/2008/10/october-26-2008/#comment-2220 Fabienne Mon, 16 Apr 2012 09:19:31 +0000 http://jenkrause.com/blog/?p=53#comment-2220 Hi Jen, thanks so much for your blog and videos. I have an 18 months old and something is wrong as she is not making one word, not copying sounds etc. Watching your videos clearly helped me keep on fighting and not listening to the "don't worry Einstein didn't speak till he was 3" comments. Thanks so much. Hi Jen, thanks so much for your blog and videos. I have an 18 months old and something is wrong as she is not making one word, not copying sounds etc. Watching your videos clearly helped me keep on fighting and not listening to the “don’t worry Einstein didn’t speak till he was 3″ comments. Thanks so much.

]]> Comment on YOU ARE NOT ALONE by Rick http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2165 Rick Fri, 03 Feb 2012 02:17:36 +0000 http://jenkrause.com/blog/?p=2108#comment-2165 Reading over some of the replies, this particular email, and your blog, I can't help but cry myself. My son is two and a half, and has exhibited everything described in this post. He's been evaluated numerous times, and they just keep saying that he'll outgrow it. He hasn't outgrown it. Ironically, he used to be able to say daddy, doggie, and ducky, and gradually stopped. He can't make certain facial expressions (can't close his lips to kiss or drink through a straw). When he sees something exciting, like a bus, truck, or train, he screeches his approval. He knows all of two signs, please and hungry, and the rest of the time we get by on nonverbal communication. We finally got a referral to a local clinic that specializes in autism and other delays, and had him evaluated. We get the results of the evaluation next week. We're convinced CAS is his diagnosis, as his symptoms are identical. I can't help but cry, because he's perfect in every way except for his speech. It hurts to see him hurt, because he's trying desperately to communicate, and he can't. Thanks for the posts; I know I'm not alone, it's just hard to cope with right now. I find myself wondering if he'll ever talk, and all I can do right now is hold out hope. Reading over some of the replies, this particular email, and your blog, I can’t help but cry myself. My son is two and a half, and has exhibited everything described in this post. He’s been evaluated numerous times, and they just keep saying that he’ll outgrow it. He hasn’t outgrown it. Ironically, he used to be able to say daddy, doggie, and ducky, and gradually stopped. He can’t make certain facial expressions (can’t close his lips to kiss or drink through a straw). When he sees something exciting, like a bus, truck, or train, he screeches his approval. He knows all of two signs, please and hungry, and the rest of the time we get by on nonverbal communication. We finally got a referral to a local clinic that specializes in autism and other delays, and had him evaluated. We get the results of the evaluation next week. We’re convinced CAS is his diagnosis, as his symptoms are identical. I can’t help but cry, because he’s perfect in every way except for his speech. It hurts to see him hurt, because he’s trying desperately to communicate, and he can’t. Thanks for the posts; I know I’m not alone, it’s just hard to cope with right now. I find myself wondering if he’ll ever talk, and all I can do right now is hold out hope.

]]> Comment on YOU ARE NOT ALONE by Becky http://jenkrause.com/blog/2011/08/you-are-not-alone/#comment-2155 Becky Wed, 04 Jan 2012 15:20:02 +0000 http://jenkrause.com/blog/?p=2108#comment-2155 Oh my gosh. I read this post and bawled. This was SO my son and my feelings as well. My son could NOT get the hang of breastfeeding. He lost so much weight that we needed to treat my 8#13oz baby as a preemie for the entire 1st year of his life. He was so gaggy that he would throw up at the slightest discomfort (a burp bubble? throw up. a non-pureed food? throw up). I had sucessfully nursed (and tandem nursed and was a La Leche League avid supporter!) 3 children before him, but all I could do for this child was pump and supplement with high calorie formula (I had never used the stuff...had to read the directions even!) I felt SO much guilt. Like I was doing something to cause his delays. I have 2 great nephews that were born within months of my son's birth. I know you shouldn't compare, but how couldn't I? My oldest child (also a boy), was an early talker (saying "Mama" at 5 months, full sentences at a year), so people would tell me that it was just because he was a boy and I knew better. The looks people would give when they would say something to him and he wouldn't respond or sometimes even make eye contact. I dreaded leaving the house. I didn't want to have to explain to people that he couldn't talk yet. That he wasn't eating "regular" table food until 15 months. Going to his well checks at the doctor put me into a crying jag that I couldn't seem to get out of. At 20 months he started speech therapy through the local Birth to 3 program (where they were either leaning toward Autism or Apraxia). In that time (7 months now), he has picked up quite a bit of communication. It's unbelievable. I am in a different place now, too. I don't feel like I need to apologize for his difficulty in communication, but I help people to understand. We celebrate his successes. He has learned quite a few signs and still has pop out words that make us laugh ("crocodile" is my favorite). The day he started saying "Mama" is one I will never forget...nor is the day that he took me by the hand and pulled me to the patio door because he wanted to play outside. I have realized that communication does not always have to be verbal and when we stopped focusing on that, it takes the pressure off of his brain and he tends to say things with less difficulty. The biggest thing I feel is alone. I don't personally know anyone else who has a child with Apraxia. Today I decided to google for blogs...I'm sure glad I did! Oh, and though we had a rough start with his feeding/weight...my son is now 27 months, in a 4t, 40" tall and weighs 36 lbs. Celebrating! :) Oh my gosh. I read this post and bawled. This was SO my son and my feelings as well. My son could NOT get the hang of breastfeeding. He lost so much weight that we needed to treat my 8#13oz baby as a preemie for the entire 1st year of his life. He was so gaggy that he would throw up at the slightest discomfort (a burp bubble? throw up. a non-pureed food? throw up). I had sucessfully nursed (and tandem nursed and was a La Leche League avid supporter!) 3 children before him, but all I could do for this child was pump and supplement with high calorie formula (I had never used the stuff…had to read the directions even!) I felt SO much guilt. Like I was doing something to cause his delays. I have 2 great nephews that were born within months of my son’s birth. I know you shouldn’t compare, but how couldn’t I? My oldest child (also a boy), was an early talker (saying “Mama” at 5 months, full sentences at a year), so people would tell me that it was just because he was a boy and I knew better. The looks people would give when they would say something to him and he wouldn’t respond or sometimes even make eye contact. I dreaded leaving the house. I didn’t want to have to explain to people that he couldn’t talk yet. That he wasn’t eating “regular” table food until 15 months. Going to his well checks at the doctor put me into a crying jag that I couldn’t seem to get out of. At 20 months he started speech therapy through the local Birth to 3 program (where they were either leaning toward Autism or Apraxia). In that time (7 months now), he has picked up quite a bit of communication. It’s unbelievable. I am in a different place now, too. I don’t feel like I need to apologize for his difficulty in communication, but I help people to understand. We celebrate his successes. He has learned quite a few signs and still has pop out words that make us laugh (”crocodile” is my favorite). The day he started saying “Mama” is one I will never forget…nor is the day that he took me by the hand and pulled me to the patio door because he wanted to play outside. I have realized that communication does not always have to be verbal and when we stopped focusing on that, it takes the pressure off of his brain and he tends to say things with less difficulty. The biggest thing I feel is alone. I don’t personally know anyone else who has a child with Apraxia. Today I decided to google for blogs…I’m sure glad I did! Oh, and though we had a rough start with his feeding/weight…my son is now 27 months, in a 4t, 40″ tall and weighs 36 lbs. Celebrating! :)

]]> Comment on Happy Birthday Handsome! by Grandma http://jenkrause.com/blog/2011/09/happy-birthday-handsome/#comment-2137 Grandma Thu, 29 Sep 2011 06:12:26 +0000 http://jenkrause.com/blog/?p=2176#comment-2137 Happy Birthday to Grandma's big boy! Love you lots, Grandma Happy Birthday to Grandma’s big boy! Love you lots, Grandma

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