Archive for the ‘Uncategorized’ Category

Break it down…

Monday, January 11th, 2010

again. One of my most frequently searched posts was about home made flash cards. Very simple to do. Our home made flashcards are just snapped pictures of things in Luke’s world. Visuals of items can be very effective for learning words. I had Luke’s speech therapist breakdown the words in the most minimal way on up to two word phrases. Here’s more on homemade flashcards and ways to break words down.

I know, gross a flashcard of our toilet. But this is an important word for a toddler who needs to be able to communicate, I have to go potty!

Posting an old post

Monday, January 11th, 2010

Blogs are different than regular websites in the fact that they continue to roll one continuous page.  This is not always user friendly.  It would take a new reader hours to go back through a hundred plus posts.  I decided to re-post from this time last year since I have been on the subject of the Nancy Kaufman clinic.


I’m scripting, it’s working! 2/09

There’s a reason speech pathologist spend years and years in school! There is so much involved. The fine details of speech are honestly mesmerizing. Much of the time at the Nancy Kaufman conference my mouth was hanging open and my brain was on overload. As a parent trying to really take it all in was difficult. However there are a lot of things I was able to grasp and have already begun implementing with Luke,  and It’s working!!! Nancy started off with this analogy; O.k if you have a child that has very little or no spoken language it’s likely you would start introducing sign language, hopefully the child would be able to pick up some approximations for signs. We certainly would not expect a young child to make a perfect ASL sign. But if the child makes the attempt at it, we would be very happy about the effort and would quickly learn what the child’s sign meant for that particular item. Thus the same thought should be in effect when it comes to spoken words. If a child can learn to make best approximations (to his/her ability)  for words, it’s a starting point. As time and therapy goes on you can help the child bridge the gaps and fill in the missing parts! Example Luke’s best word approximation for “Ball” may be “Ba”. L’s are very hard we can fill in those l’s later on when he gets them. Luke says “Pu-Pa” for purple. R’s again they are hard, they will hopefully come in time. Breaking down words to their simplest form and encouraging the child to make best word approximations. I love the example of breaking down the word “people”. If Luke pointed to a crowd and said “Pe-Po”, I would know what he meant. Just like I understand his signs even though most are far from perfect. That’s just one general idea. Hopefully that makes a little sense.

Another great tip that is helping so much is always putting the answer in the question.  To ask an Apraxic child to come up with answers out of thin air is extremely hard.  Example if Luke was trying to open the door I might say, “What do you want me to do?” but way better for me to say, “Do you want me to open the door?” even further I would say, “Do you want me to open door?”  The answer to my question is fresh in his mind, it was the very last thing I said. “Open door?”  Then I may ask him, ” Tell me Luke, open door?” Luke responds with ” Oh-pa,  do.”  Yes, it’s far perfect but again I’m happily accepting it and praising him big time for his attempt. Nancy was talking about scripting, a lot!  Helping your child write your his/her dialog. I’ve found a new passion of Luke’s, cooking! It’s a great place for scripting. It would be something like this;

“Luke, do you want to open eggs?”

“Tell me, open eggs.”

With my help and prompting he says, “Oh-pa,  eh-g” then he gets to open the eggs.

Even if I have to break it down one syllable at a time, “Oh- pa, eh-ga.” (open egg)

Then again same thing, “Luke, do you want to crack eggs?”

“Tell me, crack eggs”

He says, “cak, eh-ga” (crack egg)

and so on, “Luke, put in?”

Walk him through, “Pu-t, eh-n” (put in)

When you script over and over suddenly you will hear words come spontaneously. It must be that you are training the brain again and again until the cues fade, it just comes automatically. Now Luke goes in the drawer, pulls out a spoon and says, “Ma-ma cook?” I love it!

Another helpful hint is finding the child’s to die for items and activities especially when you are doing speech homework.  Naturally, Luke is  much more motivated when the reward is great! So I’ve put certain things aside and made them only for homework time. Makes homework more successful and a very exciting time for him!

These are just a couple of examples of what Luke’s is working on. I would encourage any one out there to go to the conference for yourself. See the methods over and over so you can get a good grasp of it.  Nancy Kaufman has conferences all over the country and even Canada! See her website for details. If you still wondering if your child even has Apraxia of speech you can send a video of your child, she will take a look at it, and she will call you back to discuss her evaluation. Also see her web site for more info. click here. If you are in the So. California area you can also see Megan McCann at Lucid speech in Murrieta. She is also an expert in the field of Apraxia, trained in the Nancy Kaufman methods, and conducting research in the field of Childhood Apraxia of speech. She sees many patients who travel a distance even just for an evaluation. She also takes questions on her website at Lucid Speech and Language.

Real Life with Mary Amoroso

Friday, January 8th, 2010

Right after I posted yesterday I came across this video.  It aired nearly a decade ago.  The information is still right on target.  I hope more people continue to raise Apraxia awareness, it would sure help out a lot of questioning parents.

Watch this video.

Apraxia of Speech- Does it ever melt away?

Wednesday, January 6th, 2010

This question seems to come up from time to time. I’ve certainly questioned if this is a possibility myself.  Oh, wouldn’t it be great if tomorrow this was suddenly resolved. Unfortunately, this is not the case. True Apraxia of speech is lifelong and does not disappear on it’s own. The good news is with appropriate help and treatment most children with CAS can learn to speak clearly.

When Luke was initially diagnosed some one explained things to me in a way that really made a lot of sense.  They said to think of the brain as a spider web, connections running in all different directions. If one part of the web is broken or disconnected, there is usually another pathway that can be used to get to the same place. It may take longer. It will take help, but you can get there.  That was a great way for me to visualize the situation. It still really bothered me though to think that forever Luke will have to think about that secondary pathway to speak.  This was inaccurate thinking on my part because if Luke learns to speak using a secondary pathway, isn’t that a first pathway for him?  He would never know any difference.  Does this make any sense? Anyhow, I’ve been doing some research on the toddler brain, it is an AMAZING thing. I have a better understanding of why early intervention is so important.

Seventy-five percent of the total brain growth occurs between one to three years. By the age of three, a toddler’s brain has formed about 1,000 trillion (not a million or even a billion, a TRILLION) pathways or synapses ­ about twice as many as we have. The toddler’s brain is super dense and primed for learning. When a pathway is used repeatedly, it becomes permanent; a pathway used infrequently is lost. This goes along with the old saying, use it or lose it! This is actually true.

You can see in this picture the density at age seven compared to age fifteen. At fifteen many connections have already  diminished. Of course we can continue to learn throughout life. It is just not as easy as in those early formidable years. Especially when it comes to speaking. It is very difficult to correct patterns that have been set in and repeated year after year.

Some people thought I was over reacting when Luke was very young and I was really starting to worry and question things. Even the doctor brushed me off.  I am so glad I moved ahead with my intuition. He is now a year and a half into therapy and still has a long way to go. When I look at some of his early videos I think, my gosh, he’s just a baby! And he was. This has given him the greatest chance of success with language. If you think something is wrong what do you have to lose by pursuing evaluations and seeking help?

About this time a year ago I attended the most valuable seminar in regards to Apraxia. Nancy Kaufman has been treating children with CAS for over 25 years. The seminar is designed for speech therapist but is also open to parents. Her methods are the reason my son has a voice today.  Nancy Kaufman is once again lecturing through out the country. If  you have the opportunity to attend her workshop you will have a wealth of practical ways to really help your child! I’m encouraging you to GO, GO, GO! LOCATIONS

Some Gifts

Sunday, December 20th, 2009

I know it’s a lot of blogging about Luke but frankly my older kids are computer savvy and on to this blog. They realize when I put silly stories about them and pictures a lot of friends and family are going to see it. They usually don’t let me publish posts about them (so I keep them to myself). But Luke, he’s not on to me, YET!

Luke had the best time last night. Well, I think we all did. I drove home with a warm feeling in my heart. This whole thing  has come so full circle. It just amazes me. Looking back at this past year when I reflect on Luke I think of one word, WORK! He’s worked so hard and accomplished so much. He just had the time of his life last night when we all drove down to speech together. The whole family. Not only were we all with him but when we got there he didn’t have to do any speech WORK! Megan, her family, and their entire staff were there to welcome Three Little Words foundation. This foundation is trying to help cover the cost for children who need one on one speech therapy. An amazing undertaking.  Luke was invited to come because happily we may get to share his story.  He may be their little spokes man.

Any how when we got there,  I could tell he thought Wow, this is a party! Everyone was there. All the doors were open. He was free to roam around. Walking in and out of the receptionist space.  The other therapist office doors were open,  he was eying all their toys.

We were eating dinner on the waiting room table were we usually play quietly waiting for our turn.  I’m standing talking to my husband when I realize Luke’s MIA. I round the bend to Megan’s room and there he is. Standing up on Megan’s table pulling down everything he ever wanted. While having to do absolutely no work for it.

Oh Happy Day!

He was even having a good taste of the pretend ice cream he always wanted to try.

I was cracking up. I’m not sure how happy he’ll be next time we have to actually do therapy.

Then it was time for pictures with Megan. Things could not have gone better.  Just to sit back and watch the interaction between the two of them was a special moment for me.  To realize my sons story will hopefully help children who really need speech therapy and cannot afford it. To watch Gods plan in this unfold.

I had to click a few pictures along with their photographer. He must have got some awesome shots. His camera was clicking a hundred times for every shot I took with Preston’s little camera.

Some gifts you can’t explain. Some gifts are given so freely. Some gifts last for a lifetime.

EXCITING NEWS…

Friday, December 11th, 2009

Miss Megan and Luke

Lucid Speech and Language is expanding. Yeah! They will have a second Corona  location beginning February, 2010.  This is going to be half the drive for us. Megan has a wonderful SLP who is also bilingual doing therapy there. What I love about speech at Lucid is the creative ways Luke’s therapist gets words out of him.  She always encourages cognitive thinking in her activities simultaneously with the speech work.  It’s always something new and exciting. Lucid is truly a place of growth and encouragement for children (and parents). If you are in the area or may even have to drive or fly for that matter, it is worth it. If you are looking for an evaluation I feel confident parent to parent to say you will get an accurate diagnosis.  here. All of the SLPs are trained and have many methods of working with Childhood  Apraxia of Speech!

P.S. Did I mention Megan McCann also conducts research and lectures on Childhood Apraxia of Speech. I am so thrilled Luke has been able to be a part of her awesome work!

It has been a delight for our family.

"Look what I made!" (Did I mention S's are hard?? Snowman, Santa, Snowflake!)

I would love to hear from you if you are or know of a good speech pathologist/Center who specialize in Childhood Apraxia of Speech. It would be great to have more resources for people in different areas. I would love to use this blog to connect people so children can get help! I also think it would be wonderful to have a story page on the blog. If you feel you would like to contribute a thought or a story, I would love to dedicate a place where you can post it and share.

Blessings at Christmas Time-

It just so happens to be Friday

Friday, December 11th, 2009

I don’t do, “Flashback Fridays.” Nor do I do, “Not me Mondays.” No,”Wordless Wednesdays (they’re hardly ever wordless??).” Guess it’s just not my blogger style but it’s Friday and here is one of my most memorable Christmas pictures- Flashback before Lily got glasses and discovered she hadn’t been completely seeing the world. When Preston still thought it was really cool to dress up like Joseph for Mom’s Christmas cards. And when Luke was just a  brand new little miracle who floated down and landed right in the middle of us all.


Luke 2: 8-14

And there were in the same country shepherds abiding in the field, keeping watch over their flock by night.

And, lo, the angel of the Lord came upon them, and the glory of the Lord shone round about them: and they were so afraid.

And the angel said unto them, Fear not: for, behold, I bring you good tidings of great joy, which shall be to all people.

For unto you is born this day in the city of David a Saviour, which is Christ the Lord.

And this shall be a sign unto you; Ye shall find the babe wrapped in swaddling clothes, lying in a manger.

And suddenly there was with the angel a multitude of the heavenly host praising God, and saying,

Glory to God in the highest, and on earth peace, good will toward men.

Please Say a Prayer

Tuesday, December 8th, 2009

Please say a prayer for a very special little friend of this blog who is getting a new set of tubes and his adenoids taken out on Thursday.  I’m praying the surgery will go smoothly and the recovery will be quick so he and his family can get back to enjoying the holidays.  I am saying an extra prayer this surgery will help this little man hear better than ever, and it will allow his speech continue to grow and flourish! Thanks Everyone!

What Can I Say

Monday, December 7th, 2009

I know I’ve talked before about the times we’ve been given papers full of words. Always the same thing, circle the words your child says spontaneously. It always killed me to hand the paper back and say, “NONE, he can’t say any.”  I know I wasn’t supposed to take a picture of this (copy right infringement, I think) but I couldn’t help myself. And I am sorry for being down about this situation lately because really when I step back and take a look at how things are going there is only one word that comes to mind,

WONDERFUL!

Look at all the wonderful words! And guess what else happened? Luke came home from school and told me, “My name LUKE!”

L’s by nature are hard, well so are F’s, S’s, R’s, and Z’s but we can talk about that later.

This is the first time he has been able to say his own name.  This is so exciting. This means when someone says “What’s your name?” he can confidently respond, “LUKE!” This means when he makes a new friend at school he can say, “Hi, I’m LUKE!”

This is big. This is a huge milestone. This is

WONDERFUL!

Candy Land

Monday, December 7th, 2009

Lily came up with a great way to play Candy Land, USE REAL CANDY! Luke really enjoyed getting a little piece of candy as he passed through each land.  He was definitely attentive to see this game through!