ABC’S

I feel like I can’t write anymore. I’ll start posts and end up erasing everything.  I write and then I read it and I’m just not being very honest. My writing has changed since my mother passed away. Parts of me have changed. I have struggled with the hard work that comes with Apraxia. This past year I have struggled period. But what bring me back to this page, “write post” is when I get an e-mail from a broken hearted mother who’s just received the news her child has Apraxia. A word she’s never heard of before, a speech disorder she never knew existed, her sudden realization that there’s going to be a road ahead. She’s found my blog and she wants to know how I did it and stayed so positive? I have not read back though my old blog posts much. I’m glad people say they are positive and encouraging. I know I was scared, very scared. There are still times I breakdown. But like always, Luke shows me the way. We face things together. I remind myself that the little boy I wasn’t sure would ever talk now comforts me with his words. When I look into his big blue eyes, I see hope, I see a future and it’s a bright one…

As we end the school year I just want to say a huge “Thank You!” to Luke’s teachers who have helped him not only in speech but in so many other ways. He has accomplished many wonderful things this year. You have given him the gift of encouragement and support that will stay with him always! You have made an impact on my sons life and I will forever be grateful!

5 Responses to “ABC’S”

  1. Samantha Says:

    I was excited when I saw you posted recently! You were one of the first blogs I found when we first received the diagnosis of “Apraxia”. It was a scary time but as I read your words, stories, trials, and triumphs - I realized I wasn’t alone! Congrats to Luke! What an awesome accomplishment!

  2. Grandma Says:

    Thank you for sharing Luke’s ABC’s!! You are hope and living proof of what hard work and dedication can do. Your support team has been wonderful from Paul, Preston and Lily to the teacher’s, Miss Megan and her group and to your biggest fan your Mom. She is so proud of you, keep writing for her. This was her journey with you and Luke. So proud of you Jen! Love, Connie

  3. Jacqui Says:

    Oh Jen, I got tears in my eyes just watching Luke sing those beautiful words. Remember when we first met, and we both wondered if our boys would ever talk? Remember how much they both struggled just to sing a song, and how we both understood each others’ struggles? I find myself just as proud of Luke as I am when I hear my Baeden sing beautiful words. Of course we all have our ups and downs on the road of life, but overall the journey has been a huge success for both of our boys! I am so proud of you, your dedication and strength. Hope all is well in California! Life here is wonderful :) Love Jacqui & Baeden

  4. Mary Clare Says:

    Your blog and videos were the first that I found when Apraxia was suggested to us at 18 months of age. If it had not been for you, your posting and blogging~I may not have found the answers to helping my Luke. I thank you from the bottom of my heart. I would love for you to read about our story with Childhood Apraxia of Speech. I am also on fb as Mommy Square~My Life As Mother and Wife and Unlocking Luke’s Voice. Thank you for all that you have done to blaze a path for mothers like me.

  5. Ally Says:

    Hi! Its Ally (Dylan’s mom)

    I just wanted to say that you are amazing. Not only was your video the ONLY one which finally made me understand what apraxia really was, made me realize that yes it was in fact what Dylan was going through, and yes that there was help and that it would get better. I couldn’t believe my luck that I actually was able to meet you in person and that you were such a strong positive lady that honestly brightened up my Mondays and Wednesdays :) Seriously miss you and Kristen! You and Luke give me so much hope and make me look forward to the years to come with Dylan. Way to go Luke on singing your ABCS! GREAT accomplishment!! Jen, hang in there and keep writing, even if you only post one to every five you delete :D You really do encourage many.

    - Ally

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