What it looks like now
One of my sweet friends Jacqui (I actually met through this blog) were talking about what Luke’s language looks like at this point. How is he at home?? This is a little excerpt from that conversation.
Luke is saying a lot of words but now comes the hard part, connecting them on his own. This is very hard. Right now impossible. It seems he is making an attempt at almost anything I say to him. He can connect two to three word little combos on his own. But much after that is me scripting each sentence for him one word at a time. Some words are very clear, some are not. Some little things he is catching on that people say around here. Like today it was, “Oh my gosh” Luke hears big brother say it then he repeats it. It is like having a one year old maybe one and a half (language wise) in the house. The kids go Luke say this, say that, and try to teach him things to say, sometimes naughty. That stage when kids will just say whatever they are told to say and everyone thinks it’s cute even if it’s a bad word. It is still so hard!!! I feel very bad for him because he has so much on his mind and I just can’t wait for him to be able to express himself. Some times two word phrases are not enough. I can never really hear the whole story. Just one little word to describe the hundreds he is thinking about. I see it in his eyes sometimes. It breaks my heart. But one day at a time my friend, that is all we can do. I am trying my best. I will script all day and all night for him, he’ll get it.
Tags: Childhood Apraxia of Speech, Does Childhood apraxia of speech ever go away, speech therapy
September 1st, 2009 at 4:39 am
I thrive on the connection of your words. I am a quiet person by nature, so while I’m now talking non-stop (to script), it can be exhausting. Some days it feels like my heart is going to burst. Either from utter joy, or from heartache.
September 1st, 2009 at 8:33 am
Laura, I completely echo how you feel. We were on a roll of amazing progress with Baeden, then last Thursday it just fell apart like someone flipped a switch and we took about five steps backward. Apraxia can be full of so many celebrations about successes, and so much heart ache about the setbacks and frustration. But, all we can do is just keep working hard, keep scripting and we WILL get there. Just another bump in the road…
September 1st, 2009 at 1:14 pm
Thanks Jacqui.
September 1st, 2009 at 6:28 pm
Thanks for sharing such heartfelt stories with us. It’s good to know there are lots of other kiddos going through a similar journey.