Archive for June, 2009

Oh Happy Day

Friday, June 26th, 2009

Last night I had the joy of hearing Luke sing for the very first time. It was the perfect end to a wonderful day! He sang very slowly “Oh, Happy Day, Happy Day, Happy Day…” over and over again. Lily and I joined in. He was beaming from ear to ear. He was proud of himself.  I have to be honest, I’ve been feeling frustrated. Sometimes it’s hard to see progress when you are on the inside looking out. There are nights when I am so tired of talking, repeating ,working and interpreting. I stay strong so I can push him through those times when he is desperately trying to tell us something we just can’t understand. I’ve learned to handle Luke’s meltdowns in a very matter of fact way.  Of course we go through the methods of trying to figure out what he’s saying. But simply sometimes we can’t. I’m honest with him and say,  I don’t understand you right now. But I will not let you give up, I will understand you soon. Never could I have imagined how one little word, Apraxia, would change my life. It’s made me stronger in so many ways.  Watching Luke work hard everyday has inspired me in such a profound way. I cannot honestly tell my children they can accomplish anything they want to in life, if I don’t  believe that for myself! I think for the first time God has shown my how to believe in myself.

A gift He’s given me through my children. We had the best day at the L.A Arboretum

Luke by a huge art sculpture made only with twigs

It gave us all a chance to breathe. Just the best place I’ve been to in a really long time

Beautiful peacocks everywhere

Luke got scared. The peacocks sounded more like prehistoric dinosaurs

Lily enjoyed a pond full of “Lily pads”

God wooed me with His endless creativity. Who knew He created so many varieties of bamboo

Preston picked up another hat to add to his collection

Later he was so sweet and wanted to give it to me for my gardening

Thanks Pres, I’ll buy you one next time so we can wear them in the garden together.

The L.a Arboretum was only twelve dollars for all four of us to get in. It was the best 12$ I have spent. So much better than standing in lines at Disneyland or any of that. If you are in the area spend the day there.  127 acres to explore. You can purchase exotic plants at the gift shop. They give you literature about planting and gardening in So. California. I was so excited to learn we live in a climate that makes it possible to have vegetables almost all year round. Very beautiful place, Hope you get a chance to visit!


Three Little Words

Thursday, June 18th, 2009

This is more information on Three Little Words! If you need help or know any companies that might possibly be able to help, please send this to them! Thank you so much, Jen

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Dearest Family, Friends and Colleagues,

We are so excited and full of anticipation to share with you a beautiful story of success and hope.

My dear friends, Erik and Cynthia, were blessed with a little boy, Garrett, whom I’ve come to know and love very much. During his first Christmas, in December 2002, they started to notice that he was not developing as a little baby should. That following January Garrett had his first seizure at four months old. He continued to grow, but Erik and Cynthia were starting to notice more signs that something further was wrong, they exhausted every avenue available to discover the reason why.  By the time Garrett reached 21 months old he was given the devastating diagnosis of Autism. Determined that Garrett would not become another statistic Erik and Cynthia did everything in their power to help their son, including speech therapy, beginning at just 24 months. Erik and Cynthia then began to learn sign language in order to communicate with their son.  Eventually, he began to speak and communicate his wants, needs, and thoughts.  Today at age 6 Garrett has just graduated from his weekly speech therapy sessions and is a beautiful, extremely intelligent, healthy boy. He also happens to be my son’s best friend and neighbor.

His parents give much of the credit to Garrett’s recovery to the speech therapy that he received. They noticed that many of Garrett’s outburst and frustrations were due to his inability to communicate.  So after Garrett’s completion of speech therapy they decided to start a non-profit foundation, Three Little Words, in honor of Garrett and as a thank you to the speech pathologists who have helped Garrett along the way. This foundation will be responsible for raising funds to pay for the necessary intervention for other children in need of speech therapy.

This, of course, would be a huge task for Erik and Cynthia to take on by themselves. Cynthia called and asked me if I would be interested in helping her take on this challenge. Without hesitation, I answered yes. This cause will benefit thousands of children across the nation. As an educator I see children everyday with learning disabilities and speech impediments that would benefit immensely from speech therapy. Quite simply there is not enough help available for the children within the school system. The School Districts are unable to adequately fill the demand with the few speech therapists that they have serving thousands of children. Many families desire to place their child in private speech therapy, but unfortunately are not able to afford to do so.

With this in mind we have come together and designed our foundation, Three Little Words with this mission:

The Three Little Words Foundation is dedicated to provide financial support to children with speech and or language delays.

Throughout Erik and Cynthia’s struggles in helping Garrett they witnessed too many children not receiving the necessary services.  Valuable time is being lost due to the lack of funding. What we do know is this:

  • Speech Therapy has a proven record of success, overcoming speech disorders, in as little as 6 months once proper services are received.
  • For the average family speech therapy will cost them over $2,500 in as little as eight months.  Insurance rarely covers this amount.
  • Schools do not have enough resources to help all of the children in need of speech therapy.  Currently, they are able to receive one hour in a group of children no less than five children, on average.  This translates into 15 minutes, at best, of therapy a week.
  • The current California State budget is dramatically impacting the lives and future of our children.  Thus far the California State Budget, for 2009-2010, has cut over $500 million in funding to regional centers alone! This is just the beginning.
  • With a 4 fold increase in the numbers of children with autism, there has been a 30 fold increase in the numbers of children with speech and language disorders in the past ten years.

Three Little Words is the first foundation of its kind. Let me repeat this, Three Little Words is the first foundation of it’s kind.  No other foundation exists for the sole purpose of funding children to go to private speech therapy. Currently, Three Little Words is being made into a non-profit corporation.  We are diligently working with attorneys to ensure our dream for Three Little Words becomes a reality. However, we need your help!  In order to raise funds to cover the start up expenses we are looking to you for a $30 gift.

Although the need is high, here is how Three Little Words is going to help our children:

  • Three Little Words will cover the costs of the speech and or language assessment and the recommended therapy schedule. No matter the cause for the speech delay.
  • Three Little Words will target children ages 3-10.
  • Funds will be paid directly to the therapist office and not to the child or child’s family.

We have high goals and a lot to accomplish in the future.  Time is wasting and we cannot count on the state any longer to help.  Our children are our future and hope for this country and we cannot allow these children to be passed over or forgotten.  However, Three Little Words is unable to go any further without your immediate donation of $30.  Our goal is to raise enough immediate funds so that we may begin serving children by August 1, 2009.  In order to do so, we need to raise $40,000.  This includes all of our start up expenses, legal fees and enough to fund children for the first month.  We will not be able to meet our goal and begin serving children unless we receive your generous donation by June 25, 2009.  Please know that your $30 gift is greatly appreciated, furthermore no gift would be considered too great or too small and if you are unable to give at this time we understand.  In any case, we ask that you would forward this letter to others who you feel would support a charity such as Three Little Words.

For your convenience we have set up a web-site,

www.helpchildrenspeak.org

where you are able to make your donations safely and securely.

Please keep in mind that if all of our paper work is accepted, your donations will be tax deductible.  The attorney we are working with has set up over 30 non-profits with 100% success rate, so we are confident we will have no issue in this process.  As soon as everything is confirmed, we will contact you regarding any donation made.

Thank you for your help in making Three Little Words a reality.

Sincerely,

Mary, Cynthia and Erik

Founders of Three Little Words

Really Good News and Answer to Prayer!

Tuesday, June 16th, 2009

Vacation is over for now, and it’s back to work for Luke. We made our long trip down to speech therapy yesterday. It’s funny, on the way down I was really questioning how much longer I could continue making the drive. Seems lately all odds have been against us. A trucker threw a rock at my front window and cracked it in half. Luke spent some time screaming because the DVD player wasn’t working. I’ve been feeling a little frazzled. There’s been a lot on my mind. Luke will turn three in September and our services through regional center will be discontinued.  Regional center has been so wonderful to us. They have provided Luke with excellent services. We have met some really wonderful people.  I feel so fortunate that he has been given so much help. I really hope services continue to be available to other children. With our current financial situation in California, it’s not looking good.  Regional is really pushing for parents to go through their private insurance.  Insurance companies offer so little. I think we  have 5-10 speech therapy sessions available per year through our insurance. That’s not going  to help a child with Apraxia by a long shot!  Anyhow,  after our long trip down Luke and I got some really great news, Lucid Speech and Language is going to be expanding, they are going to have a second location in Corona!! Which is half the drive we are doing now.  Megan McCann is going to be seeing patients twice a week at the Corona location and Luke will be top of her list for transferring patients!! I am so excited not only for us, but for all the other children who will benefit from her help!  Lucid will be able to reach out to a whole new group of children who are really in need! I have been praying for this expansion. It’s really going to happen!

Our second bit of really good news is Megan has introduced us to a new foundation! Three Little Words. This is a non-profit organization that is raising money to help families pay for continued speech therapy.  Aimed at children who are 3-10 years old with any type of speech problem. They recognize the great need for children to continue 1 on 1 speech therapy, that the public school system just cannot  provide. Please take a moment to check out what they are doing. www.helpchildrenspeak.org They are doing a fund raising walk coming up in September. I have been in contact with them. I received a wonderful letter back. They would love nothing more than to see Luke able to continue on with Megan. I am so excited. Speech therapy is very expensive.This is truly an answer to prayer as I have been very worried about Luke’s needs once we lose regional!

Thank you Lord. Why do I keep worrying?? You always show us a way!

Simply trusting everyday,

Trusting through a stormy way;

Even when my faith is small,

Trusting Jesus, that is all.

Singing if my way is clear,

Praying if the path be drear;

If in danger, for Him call;

Trusting Jesus, that is all.

Edgar Page Stites

A Breath of Fresh Air

Wednesday, June 10th, 2009

O.k.  So the title of this post ended up being A Breath of Fresh Air. Our annual end of school camping trip. But here are some other titles the kids and I came up with;

There’s only So Much Duct Tape Can Fix

Duct Tape is the Name of the Game, and Stinky is the Smell Inside

Welcome to the Jungle

The Last Days of The Shaggin’ Waggin’

I Traded My Hotel Digs for a Stinky Rig and last but not least,

The Krause Motor Home, A Camper like no other!

I only joke because nothing amounts to more fun than being in the motor home with my family!  So what if duct tape is the only thing securing the overhead bunk. Preston survived, and it always gives us lot’s to laugh about (we even wrote a song about it).  I wouldn’t have it any other way.  Getting out of our usual environment is good therapy for all of us. I’m saying a little prayer the Krause motor home will live on!

The Bunny hunters….

And the frog catcher…

Lukey, show us the sign for frog??

And some good lessons learned. When sissy says run, you better run!

Little legs can only run so fast. Down Luke went. So we went from dry clothes to this….

Daddy will keep you warm on the way back.

Preston was feeling free….

Lily was happy…

I really can’t believe another year has gone by. It’s been a rough one in many ways. God’s grace has held us together. I’m grateful for every day, every moment, I get to be with my pack, my gang,  my favorite people in all the world…My Family!

Sign Language Changed His Life and Mine

Wednesday, June 3rd, 2009

Sign language is still such an important part of Luke’s life.  With some vocalization, signs and gestures we can usually figure out most things. How frustrated and different life would be at this point if we had not started signing. People have asked me, If he is deaf?  No, he is not deaf. He just has a hard time speaking, so we teach him signs so he can communicate with us. And communicate he does. I have had countless conversations with Luke, and he hasn’t said a single word. It amazes me.  Our new church has a deaf ministry. I take Luke up front every Sunday and we sign with the deaf members. There is such an overwhelming feeling that comes over me. Worship, in any language! Watching my son sing, sing, sing with his hands. A vision that is forever ingrained in my mind. It is the most beautiful thing I have ever seen. Watching him sing about angel wings, soaring with eagles, the power of the almighty Lord! Some times the hands just start going. He feels the freedom. He is not bound by the spoken word, he feels it in his heart. We so often take for granted that we live in a country where so much is available to our children. There are places all throughout the world where poor deaf children have no form of communication. Where they are considered the town dummies and are made fun of  through out their lives. Signs of Love is a ministry that is trying to change that- One sign at a time! The first time I met Robin Hanna (the founder and director) I was so sad and crying because we had just found out Luke had Apraxia. We had just started signing with him, I was feeling  hopeless. She looked me in the eyes and said Luke can do anything he wants to do in life! He lives in a country where resources are endless. No matter what the out come, he will be just fine. You know sometimes we just need a good kick to make us realize just how fortunate we are.  It breaks my heart to think about how many Apraxic children(and deaf) are in this world. Totally competent and intelligent. People around them labeling them as mentally impaired and telling them they are stupid because they hear slurred speech, and can’t understand them. I know there is a reason for all of this in my life. I hope and pray God will use me….

Today my prayer is for children around the world with Apraxia!

Home Made Flash Cards

Monday, June 1st, 2009

Making home made flash cards is a fun easy way to help your child learn to say words that are relevant in their life! So much of learning process with Apraxia is visual cues. We use the Kaufman cards along with our home made cards. What we did is just go around taking pictures of everything that Luke uses and finds important in his daily life. Everything from his bed, bath tub, toothbrush, shoes, socks, juice, milk, pets, siblings, books, toys, anything that he would desire to say. Then I took the cards to Luke’s speech therapist and had her break down the words to their simplest form. She broke the words down from basic all the way up to two word phrases.  They are very helpful.

Just an idea……..