I spent the last two weeks looking through Luke’s records. Trying to organize them and get them together. Today we had a very important doctors appointment with a Neurologists from CHOC hospital. This past week I’ve written several entries but could not bring myself to post them. The doctor suspects Luke is having seizures. I never knew seizures came in so many forms. I always thought of the shaking kind. The type the doctor suspects Luke is having is called Absence seizure. It appears as though the child is zoning out or day dreaming. And actually is perfectly still. Lukes had some episodes that I have had a hard time getting him out of. What worries me even more is the doctor said seizures are not a disease in itself, it’s always secondary to another existing condition. So begins another series of tests for Lukey. I don’t remember ever being so scared in my life. There is no worry like that of your child. The last couple weeks have been almost surreal. Just watching every little detail of Luke and the kids playing… holding onto every moment….wondering if we are on the brink of discovering things for Luke are more serious than we thought. I continue to ask for your prayers. I look back in my life and see all the times God has saved me and rescued me, His Mercy has been so good me! I continue to trust in Him and remain strong in my faith. But my heart breaks for Luke and I feel helpless as a mother. More waiting and uncertainty. Thank you for your prayers, we really need them. I hope I can continue to share when we know more.-Jen
John 3:16 For God so loved the world, that He gave His one and only Son , that whoever believes in Him shall not parish but have eternal life.
March 19th, 2009 at 5:27 am
Take a deep breath….you will get through this! I can only imagine how scared you feel at not knowing what is coming next, but have faith. You will all get throught his together, as a family, no matter what comes your way. Just look at what that little boy has accomplished already! He is a trooper. And he accomplished it with the support of his family! You WILL get through whatever comes your way…together! We’ll be praying for Luke and your family!
March 20th, 2009 at 10:46 am
Thank you Jacqui, Thank you so much. I’m keeping you guys in my prayers too! Love, jen
March 21st, 2009 at 2:20 pm
jen, you never scece(?) to amaze me….. the roads have been sometimes long , windy ,and up hill, but its those roads that allow us to enjoy the down hill slopes….. we seem to think we dont have it in us to face the “giants”, but as we look back we realize it was just a obstical course….. one down….. a few more to go. you and i have such interesting lives where the roads seem so hard to get through….. although we are traveling totally separtate roads….at the end we will be in the same place….”victorious”.who would of ever though that when we were 9 and 10 that our lives would be so different and so difficult….its so hard to just sit back and wait on “gods perfect plan”…. especially when it has to do with our kids…. its like ok god…. you gave me these gifts and its not what i was expecting…..you know when i first started going through the things with my health and my kids, a friend told me that our kids were borrowed treasures. they were here for us to take care of, watch over, and protect them with all we have….. that ultimately, they are Gods he has just trusted us with them….so when i think of that its so hard to grasp…. there his, not mine??? well its that way with everything…. were his also!!! “He loves us so much that he gave up his only son” jen, god will work for the good of those who love him, and jen you love him! i never even met luke yet, and he has done something in your life and your kids lives that is undecribable…..without him, without where he has taken you with this, you wouldnt beable to write the way you write…. speak the way you speak…. appericate the things you do….. we just wish, that we could have thing differently inorder for god to get our attention…. its like why this…. why now???? i am praying…. i will keep praying… and am looking forward to the day we will be celebrating the “victory”…..love you, miss you, and we still need to get together!!!! (i think im open monday….) email me…. i check that daily, i only rad your blogs like every week or so…..all my love, melissa